Frances Saldana is one of the most remarkable women I know. She has lost all three of her children to Huntington's disease (HD) - a nasty, fatal disease that steadily destroys the nerve cells in the brain - but still retains a fighting spirit and a commitment to finding a cure for HD. She is … Continue reading A Tribute to Huntington’s Disease Warriors in the Age of COVID-19
HD-CARE
Advocating for Huntington’s Disease: Daniel Medina’s Journey
In honor of Huntington’s Disease (HD) Awareness Month, we’re featuring a guest blog by HD patient advocate Daniel Medina. Daniel became actively involved in the HD community when he learned that his younger brother was at risk for inheriting this devastating neurodegenerative disease. Since then he has been a champion for HD awareness by organizing … Continue reading Advocating for Huntington’s Disease: Daniel Medina’s Journey
On the Hunt for Huntington’s Disease Treatments in the New Millennium
“Over the next five to ten years, we want to make Huntington’s disease an increasingly treatable condition.” This bold and inspiring statement was made by Dr. Ray Dorsey at the inaugural HD-CARE symposium for Huntington’s disease (HD) research held at UC Irvine last month. The event brought together scientists, doctors, patients, family members, and caregivers … Continue reading On the Hunt for Huntington’s Disease Treatments in the New Millennium