LISTEN TO AN AUDIO VERSION OF THIS BLOG Adrienne Shapiro and Marissa Cors are a remarkable pair by any definition. The mother and daughter duo share a common bond, and a common goal. And they are determined not to let anyone stop them achieving that goal. Marissa was born with sickle cell disease (SCD) a … Continue reading Mother and daughter team up to fight bias and discrimination in treatment for people with sickle cell disease
Axis Advocacy
Physicians and patient advocates on the front lines of the fight for a more equitable health system
Over the last year there has been increasing awareness of the inequalities in the American healthcare system. At every level there is evidence of bias, discrimination and unequal access to the best care. Sometimes unequal access to any care. That is, hopefully, changing but only if the new awareness is matched with action. At the … Continue reading Physicians and patient advocates on the front lines of the fight for a more equitable health system
CIRM & NHLBI Create Landmark Agreement on Curing Sickle Cell Disease
CIRM Board approves first program eligible for co-funding under the agreement Adrienne Shapiro, co-founder of Axis Advocacy, with her daughter Marissa Cors, who has Sickle Cell Disease. Sickle Cell disease (SCD) is a painful, life-threatening blood disorder that affects around 100,000 people, mostly African Americans, in the US. Even with optimal medical care, SCD shortens … Continue reading CIRM & NHLBI Create Landmark Agreement on Curing Sickle Cell Disease
Just a Mom: The Journey of a Sickle Cell Disease Patient Advocate [video]
Adrienne Shapiro will tell you that she’s just a mom. And it’s true. She is just a mom. Just a mom who is the fourth generation of mothers in her family to have children born with sickle cell disease. Just a mom who was an early advocate of innovative stem cell and gene therapy research … Continue reading Just a Mom: The Journey of a Sickle Cell Disease Patient Advocate
World Sickle Cell Day: A View from the Front Line
June 19th is World Sickle Cell Day. Sickle cell disease is an inherited blood disorder that causes normally round red blood cells to take on an abnormal sickle shape, resulting in clogged arteries, severe pain, increased risk of stroke and reduced life expectancy. To mark the occasion we asked Nancy M. Rene to write a … Continue reading World Sickle Cell Day: A View from the Front Line
The Stem Cellar 