How To Be a CIRM Stem Cell Champion

Patients suffering from incurable diseases don’t have the luxury of being patient. Their lives depend on the speedy development of new therapies. That’s why our mission at CIRM is to accelerate stem cell treatments to patients with unmet medical needs.

Through CIRM funding of top-notch stem cell research – some of which is already in clinical trials – there’s good reason to be optimistic about achieving our goal. But funding research is not enough. We also need to attack disease by engaging the patient advocacy community. That’s where we need your help. We’re calling on you to join us by becoming a CIRM Stem Cell Champion.

What exactly is a CIRM Stem Cell Champion, you ask? And what kind of commitment are we asking for? Well, watch our new two-minute video below to find out and sign up on our Stem Cell Champions web page:

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2 thoughts on “How To Be a CIRM Stem Cell Champion

  1. Why do you have to be a champion to do the right thing? Whatever happened to humanity for all?

    Local mom takes on the FDA for life-changing drug to be made available to kids with SMA

    WEST PALM BEACH, Fla. – A local mom just got back from a trip to Washington, D.C., where she spoke with other moms to pharmaceutical companies and the Food and Drug Administration.

    The group is part of the “FAST” movement, or “Families for the Acceleration of SMA Treatments.”

    Katie Myers’ son, Kaden, has SMA or spinal muscular atrophy.

    SMA, she says, can be a death sentence for babies.

    “Dying from a rare disease is horrible and tragic. But dying from a rare disease when there should’ve been a treatment available– it’s unthinkable.”

    Katie says the drug, nusinersen, is currently used in clinical trials but not accessible to all children with SMA.

    The group asked the FDA and companies behind the drug to make it quickly available to kids across the country.

    “It’s honestly sometimes harder than the diagnosis itself, knowing there’s something out there that can help your kid but you can’t do anything to access it,” Katie said.

    http://www.wptv.com/news/region-c-palm-beach-county/west-palm-beach/local-mom-takes-on-the-fda-for-life-changing-drug-to-be-made-available-to-kids-with-sma

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