You can read about a disease or hear someone talking about it and be engaged and interested. But when you see and hear the people who have the disease talking about it and the impact it has on their lives, that's when a profound impact occurs. When you look into their eyes and hear them … Continue reading Using film to break down barriers around rare disease
Epidermolysis bullosa
How a tiny patch of skin helped researchers save the life of a young boy battling a deadly disease
By any standards epidermolysis bullosa (EB) is a nasty disease. It’s a genetic condition that causes the skin to blister, break and tear off. At best, it’s painful and disfiguring. At worst, it can be fatal. Now researchers in Italy have come up with an approach that could offer hope for people battling the … Continue reading How a tiny patch of skin helped researchers save the life of a young boy battling a deadly disease
Using stem cells paves new approach to treating a blistering skin disease
Imagine a child not being able to run or jump or just roll around, for fear that any movement could strip away their skin and leave them with open, painful wounds. That’s what life is like for children with a nasty genetic disease called epidermolysis bullosa or EB. The slightest touch can cause their skin … Continue reading Using stem cells paves new approach to treating a blistering skin disease