We often talk about the important role that patient advocates play in helping advance research. That was demonstrated in a powerful way last week when the CIRM Board approved almost $12 million to fund a clinical trial targeting a rare childhood disorder called cystinosis. The award, to Stephanie Cherqui and her team at UC San … Continue reading “A new awakening”: One patient advocate’s fight for her daughters life
Author: Kevin McCormack
Rallying to support CIRM and stem cell research
Will CIRM be funding stem cell research after this year? From even before we were created by the passage of Proposition 71 back in 2004, the voices of patients and patient advocates have been at the heart of CIRM’s existence. Today they are every bit as vital to the work we do, and even more … Continue reading Rallying to support CIRM and stem cell research
Clinical trials: separating the wheat from the chaff
What do you do when the supposed solution to a problem actually turns out to be a part of the problem? That’s the situation facing people who want to direct patients to scientifically sound clinical trials. Turns out the site many were going to may be directing patients to therapies that are not only not … Continue reading Clinical trials: separating the wheat from the chaff
Seeing is believing: A new tool to help us learn about stem cells.
Cave paintings from Libya: evidence humans communicated through visual images long before they created text There’s a large body of research that shows that many people learn better through visuals. Studies show that much of the sensory cortex in our brain is devoted to vision so our brains use images rather than text to make … Continue reading Seeing is believing: A new tool to help us learn about stem cells.
Taking the message to the people: fighting for the future of stem cell research in California
Stem cells have been in the news a lot this week, and not necessarily for the right reason. First, the US Food and Drug Administration (FDA) won a big legal decision in its fight to crack down on clinics offering bogus, unproven and unapproved stem cell therapies. William Shatner: Photograph by Jerry Avenaim.wikimedia.org/w/index.php?curid=3413082 But then … Continue reading Taking the message to the people: fighting for the future of stem cell research in California
Media matters in spreading the word
Cover of New Yorker article on "The Birth Tissue Profiteers". Illustration by Ben Jones When you have a great story to tell the best and most effective way to get it out to the widest audience is still the media, both traditional mainstream and new social media. Recently we have seen three great examples of … Continue reading Media matters in spreading the word
How a see-through fish could one day lead to substitutes for bone marrow transplants
Human blood stem cells For years researchers have struggled to create human blood stem cells in the lab. They have done it several times with animal models, but the human kind? Well, that’s proved a bit trickier. Now a CIRM-funded team at UC San Diego (UCSD) think they have cracked the code. And that would … Continue reading How a see-through fish could one day lead to substitutes for bone marrow transplants
CIRM public events highlight uncertain future of stem cell research
When governments cut funding for scientific research the consequences can be swift, and painful. In Canada last week for example, the government of Ontario cut $5 million in annual funding for stem cell research, effectively ending a project developing a therapy to heal the damaged lungs of premature babies. Here in the US the federal … Continue reading CIRM public events highlight uncertain future of stem cell research
Stories that caught our eye: FDA grants orphan drug status to CIRM-funded therapy; stunning discovery upends ideas of cell formation; and how tadpoles grow new tails
Gut busting discovery Intestinal stem cells: Photo courtesy Klaus Kaestner, Penn Institute for Regenerative Medicine It’s not often you read the word “sensational” in a news release about stem cells. But this week researchers at the University of Copenhagen released findings that are overturning long-held ideas about the development of cells in our stomachs. So … Continue reading Stories that caught our eye: FDA grants orphan drug status to CIRM-funded therapy; stunning discovery upends ideas of cell formation; and how tadpoles grow new tails
Testing a drug is safe before you give it to a pregnant woman
Pregnant woman holding medicine. When a doctor gives you a medication you like to think that it’s safe, that it has been tested to make sure it will do you some good or, at the very least, won’t do you any harm. That’s particularly true when the patient is a pregnant woman. You hope the … Continue reading Testing a drug is safe before you give it to a pregnant woman