
From even before we were created by the passage of Proposition 71 back in 2004, the voices of patients and patient advocates have been at the heart of CIRM’s existence. Today they are every bit as vital to the work we do, and even more essential if we are to be able to continue doing that work.
In 2004, the patient advocate community recognized that the research we fund could help them or a loved one battling a deadly disease or disorder. And over the last 15 years that’s exactly what we have done, trying to live up to our mission of accelerating stem cell treatments to patients with unmet medical needs. And with 54 clinical trials already under our belt we have made a good start.
But it’s just a start. We still have a lot to do. The problem is we are quickly running out of money. We expect to have enough money to fund new projects up to the end of this year. After that many great new ideas and promising projects won’t be able to apply to us for support. Some may get funding from other sources, but many won’t. We don’t want to let that happen.
That’s why we are holding a Patient Advocate event next Tuesday, June 25th from 6-7pm in Petree Hall C., at the Los Angeles Convention Center at 1201 South Figueroa Street, LA 90015.
The event is open to everyone and it’s FREE. We have created an Eventbrite page where you can get all the details and RSVP if you are coming. And if you want to get there a little early that’s fine too, we’ll be there from 5pm onwards so you’ll have a chance to ask us any questions you might have beforehand.
It’s going to be an opportunity to learn about the real progress being made in stem cell research, thanks in no small part to CIRM’s funding. We’ll hear from the researchers who are saving lives and changing lives, and from the family of one baby alive today because of that work.
We will hear about the challenges facing CIRM and the field, but also about a possible new ballot initiative for next year that could help re-fund CIRM, giving us the opportunity to continue our work.
That’s where you, the patients and patient advocates and members of the public come in. Without you we wouldn’t be here. Without you we will disappear. Without us the field of stem cell research loses a vital source of support and funding, and potentially-life saving therapies fall by the wayside.
We all have a huge stake in this. So we hope to see you next Tuesday, at the start of what may be the next chapter in the life of CIRM.
Thank you for the kind invitation, however we reside in Indiana and will be unable to attend.
Could you share the most recent research concerning stem cells and stroke survivors?
Rich
Co
On Wed, Jun 19, 2019 at 11:28 AM The Stem Cellar wrote:
> Kevin McCormack posted: ” Will CIRM be funding stem cell research after > this year? From even before we were created by the passage of Proposition > 71 back in 2004, the voices of patients and patient advocates have been at > the heart of CIRM’s existence. Today they are every bit ” >
Dear Rich, sorry you were unable to join us but I know what a trek it would be to come all the way from Indiana for one evening! Right now none of the projects we are funding are in clinical trials but some of the results from earlier clinical trials have been very encouraging. Our hope is that the researchers behind these therapies will apply to the FDA for permission to run larger clinical trials and that will help us see if these approaches really work. When that happens we will definitely blog about it so if you stay tuned to our blog you’ll learn all about those as they happen.
Yours
Kevin