How often do you get to ask an expert a question about something that matters deeply to you and get an answer right away? Not very often I'm guessing. That's why CIRM's Facebook Live "Ask the Stem Cell Team About Patient Advocacy" gives you a chance to do just that this Thursday, March 14th from … Continue reading Facebook Live – Ask the Stem Cell Team about Patient Advocacy
David Higgins
Tips on how to be a great Patient Advocate from three of the best Advocates around
No one sets out to be a Patient Advocate. It’s something that you become because of something that happens to you. Usually it’s because you, or a loved one or a friend, becomes ill and you want to help find a treatment. Whatever the reason, it is the start of a journey that often throws … Continue reading Tips on how to be a great Patient Advocate from three of the best Advocates around
The power of one voice: David Higgins’ role in advancing stem cell research
As we start a new year, we are fine tuning our soon-to-be-published 2018 Annual Report, summarizing our work over the past 12 months. The report is far more than just a collection of statistics about how many clinical trials we are funding (50 – not too shabby eh!) or that our support has generated an … Continue reading The power of one voice: David Higgins’ role in advancing stem cell research
Hey, what’s the big idea? CIRM Board is putting up more than $16.4 million to find out
When you have a life-changing, life-threatening disease, medical research never moves as quickly as you want to find a new treatment. Sometimes, as in the case of Parkinson’s disease, it doesn’t seem to move at all. At our Board meeting last week David Higgins, our Board member and Patient Advocate for Parkinson’s disease, made that … Continue reading Hey, what’s the big idea? CIRM Board is putting up more than $16.4 million to find out
Stem Cell Patient Advocates, Scientists and Doctors Unite Around a Common Cause
Some phrases just bring a smile to your face: “It’s a girl/boy”, “Congratulations, you got the job”, and “Another beer sir?” (or maybe that last one is just me). One other phrase that makes me smile is “packed house”. That’s why I was smiling so much at our Patient Advocate Event at UC San Diego … Continue reading Stem Cell Patient Advocates, Scientists and Doctors Unite Around a Common Cause
Stem Cell Stories That Caught Our Eye: Free Patient Advocate Event in San Diego, and new clues on how to fix muscular dystrophy and Huntington’s disease
Stem cell research is advancing so fast that it’s sometimes hard to keep up. That’s one of the reasons we have our Friday roundup, to let you know about some fascinating research that came across our desk during the week that you might otherwise have missed. Of course, another way to keep up with the … Continue reading Stem Cell Stories That Caught Our Eye: Free Patient Advocate Event in San Diego, and new clues on how to fix muscular dystrophy and Huntington’s disease
You Are Invited: CIRM Patient Advocate Event, San Diego April 20th
The word “cured” is one of the loveliest words in the English language. Last year we got to use it twice when we talked about stem cell therapies we are funding. Two of our clinical trials are not just helping people, they are curing them (you can read about that in our Annual Report). But … Continue reading You Are Invited: CIRM Patient Advocate Event, San Diego April 20th
How do you know what patients want if you never even ask them?
Our mission at CIRM is to accelerate stem treatments to patients with unmet medical needs. But what if those needs are not just unmet, they’re also unknown? What happens when those developing treatments never even bother to ask those they are trying to help if this is what they really need, or want? The question … Continue reading How do you know what patients want if you never even ask them?
Patients are the Heroes at the CIRM Alpha Stem Cell Clinics Symposium
UCSD’s Catriona Jamieson and patient advocate Sandra Dillon at the CIRM Alpha Clinic Network Symposium Sometimes, when you take a moment to stand back and look at what you have accomplished, you can surprise yourself at how far you have come, and how much you have done in a short space of time. Take the … Continue reading Patients are the Heroes at the CIRM Alpha Stem Cell Clinics Symposium
The Stem Cellar 