It’s hard thinking of something as rare when one in 20 people are at risk of experiencing it in their lifetime. But that’s the situation with rare diseases. There are more than 7,000 of them and each affects under 200,000 people. In some cases they may only affect a few hundred people. But for each … Continue reading Rare Disease Day – fighting for awareness and hope
Patient Advocate event
What makes an expert an expert?
When we launched our Facebook Live “Ask the Expert” series earlier this year we wanted to create an opportunity for people to hear from and question experts about specific diseases or disorders. The experts we turned to were medical ones, neurologists and neuroscientists in the case of the first two Facebook Live events, stroke and … Continue reading What makes an expert an expert?
ALS is in the spotlight in CIRM’s “Ask the Expert About ALS & Stem Cells” Facebook Live event
American Football great Dwight Clark was renowned for having the safest hands in the game when he played for the San Francisco 49ers. But in September 2015 he was diagnosed with ALS (also known as Lou Gehrig’s disease) after not being able to use those hands to open a package of sugar. Less than three … Continue reading ALS is in the spotlight in CIRM’s “Ask the Expert About ALS & Stem Cells” Facebook Live event
The story behind the book about the Stem Cell Agency
WHY I WROTE “CALIFORNIA CURES” By Don C. Reed It was Wednesday, June 13th, 2018, the launch day for my new book, “CALIFORNIA CURES: How the California Stem Cell Research Program is Fighting Your Incurable Disease!” As I stood in front of the audience of scientists, CIRM staff members, patient advocates, I thought to myself, … Continue reading The story behind the book about the Stem Cell Agency
SCID kid scores big on TV
One of the stories I never tire of telling is about Evie Vaccaro. She’s the little girl who was born with a fatal immune condition called severe combined immunodeficiency or SCID. Children with this condition have no immune system, no protection against infections, and often die in the first two years of life. But thanks … Continue reading SCID kid scores big on TV
Can stem cells help people recovering from a stroke? You asked, and the experts answered
We recently held our first ever Facebook Live event. It was focused on the use of stem cells and recovery from a stroke and featured three great guests: Dr. Gary Steinberg, chief of Neurosurgery at Stanford, Sonia Coontz, a patient of Dr. Steinberg’s, and CIRM’s own Science Officer Dr. Lila Collins. We had an amazing … Continue reading Can stem cells help people recovering from a stroke? You asked, and the experts answered
Can stem cells help people recover from a stroke? Join us for a Facebook Live event this Thursday, May 31 for the answers
Stroke is one of the leading causes of death in the US and the leading cause of serious, long-term disability. But could stem cell therapies change that and help people who’ve had a brain attack? Could stem cells help repair the damage caused by a stroke and restore a person’s ability to speak normally, to … Continue reading Can stem cells help people recover from a stroke? Join us for a Facebook Live event this Thursday, May 31 for the answers
TELL ME WHAT I NEED TO KNOW: A Patient Advocate’s guide to being a Patient Advocate
A few weeks ago I was at the CIRM Alpha Stem Cell Clinic Network Symposium at UCLA and was fortunate enough to hear Gianna McMillan speak about patient advocacy. It was a powerful, moving, funny, and truly engaging talk. I quickly realized I wanted to blog about her talk and so for the first few … Continue reading TELL ME WHAT I NEED TO KNOW: A Patient Advocate’s guide to being a Patient Advocate
Patients at the heart of Alpha Stem Cell Clinics Symposium
I have been to a lot of stem cell conferences over the years and there’s one recent trend I really like: the growing importance and frequency of the role played by patient advocates. There was a time, not so long ago, when having a patient advocate speak at a scientific conference was almost considered a … Continue reading Patients at the heart of Alpha Stem Cell Clinics Symposium
A road trip to the Inland Empire highlights a hot bed of stem cell research
It took us longer than it should have to pay a visit to California’s Inland Empire, but it was definitely worth the wait. Yesterday CIRM’s Roadshow went to the University of California at Riverside (UCR) to talk to the community there – both scientific and public – about the work we are funding and the … Continue reading A road trip to the Inland Empire highlights a hot bed of stem cell research
The Stem Cellar 