THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST It’s hard to think of something as being rare when it affects up to 30 million Americans and 300 million people worldwide. But the truth is there are more than 6,000 conditions – those affecting 200,000 people or fewer – that are considered rare. Today, … Continue reading Joining the movement to fight rare diseases
Patient Advocate event
Celebrating Stem Cell Awareness Day
THIS BLOD IS ALSO AVAILABLE AS AN AUDIOCAST ON SPOTIFY The second Wednesday in October is celebrated as Stem Cell Awareness Day. It's an event that CIRM has been part of since then Governor Arnold Schwarzenegger launched it back in 2008 saying: ”The discoveries being made today in our Golden State will have a great … Continue reading Celebrating Stem Cell Awareness Day
Mother and daughter team up to fight bias and discrimination in treatment for people with sickle cell disease
LISTEN TO AN AUDIO VERSION OF THIS BLOG Adrienne Shapiro and Marissa Cors are a remarkable pair by any definition. The mother and daughter duo share a common bond, and a common goal. And they are determined not to let anyone stop them achieving that goal. Marissa was born with sickle cell disease (SCD) a … Continue reading Mother and daughter team up to fight bias and discrimination in treatment for people with sickle cell disease
SPARKing the genius of the next generation of scientists
Dr. Kelly Shepard, SPARK program director After almost 18 months – and counting – that have put us all to the test, made us wear masks, work from home, limit contact with all but the closest of family and friends it’s a wonderful thing to be able to get a glimpse of the future and … Continue reading SPARKing the genius of the next generation of scientists
Hollywood and Patient Advocacy – two people who are on our Board but never boring
At first glance, Lauren Miller Rogen and David Higgins, PhD, seem an unlikely pair. She’s an actor, writer, and director and has worked with some of the biggest names in Hollywood. He has a doctorate in molecular biology and genetics and has worked at some of the most well-known companies in biotech. But together they … Continue reading Hollywood and Patient Advocacy – two people who are on our Board but never boring
Physicians and patient advocates on the front lines of the fight for a more equitable health system
Over the last year there has been increasing awareness of the inequalities in the American healthcare system. At every level there is evidence of bias, discrimination and unequal access to the best care. Sometimes unequal access to any care. That is, hopefully, changing but only if the new awareness is matched with action. At the … Continue reading Physicians and patient advocates on the front lines of the fight for a more equitable health system
Everything you wanted to know about COVID vaccines but never got a chance to ask
All this month we are using our blog and social media to highlight a new chapter in CIRM’s life, thanks to the voters approving Proposition 14. We are looking back at what we have done since we were created in 2004, and also looking forward to the future. Today we feature a rare treat, an … Continue reading Everything you wanted to know about COVID vaccines but never got a chance to ask
Month of CIRM: Making sure stem cell therapies don’t get lost in Translation
All this month we are using our blog and social media to highlight a new chapter in CIRM’s life, thanks to the voters approving Proposition 14. We are looking back at what we have done since we were created in 2004, and also looking forward to the future. Today we feature a blog written by … Continue reading Month of CIRM: Making sure stem cell therapies don’t get lost in Translation
Progress in the fight against Sickle Cell Disease
Marissa Cors, sickle cell disease patient advocate Last November Marissa Cors, a patient advocate in the fight against Sickle Cell Disease (SCD), told the Stem Cellar “A stem cell cure will end generations of guilt, suffering, pain and early death. It will give SCD families relief from the financial, emotional and spiritual burden of caring … Continue reading Progress in the fight against Sickle Cell Disease
Inspiring new documentary about stem cell research
Poster for the documentary "Ending Disease" 2020 has been, to say the very least, a difficult and challenging year for all of us. But while the focus of the world has, understandably, been on the coronavirus there was also some really promising advances in stem cell research. Those advances are captured in a great new … Continue reading Inspiring new documentary about stem cell research