Today marks two significant events for the Black community. June 19th is celebrated as Juneteenth, the day when federal troops arrived in Galveston, Texas to ensure that the enslaved people there were free. That moment came two and a half years after President Abraham Lincoln signed the Emancipation Proclamation into law. June 19th is also … Continue reading Two reasons to remember June 19th
Patient Advocacy
Join us to hear how stem cell and gene therapy are taking on diseases of aging
It is estimated that as many as 90 percent of people in industrialized countries who die every day, die from diseases of aging such as heart disease, stroke, and cancer. Of those still alive the numbers aren’t much more reassuring. More than 80 percent of people over the age of 65 have a chronic medical … Continue reading Join us to hear how stem cell and gene therapy are taking on diseases of aging
The power of the patient advocate: how a quick visit led to an $11M grant to fund a clinical trial
THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST Members of NFOSD visiting UC Davis in 2013 At the California Institute for Regenerative Medicine (CIRM) we are fortunate in having enough money to fund the most promising research to be tested in a clinical trial. Those are expensive projects, often costing tens of millions of … Continue reading The power of the patient advocate: how a quick visit led to an $11M grant to fund a clinical trial
Marathon effort to raise awareness about Huntington’s disease
The COVID pandemic put a lot of things on hold over the last two years. But thanks to the vaccine and boosters more and more people are feeling comfortable about getting out and about again. Case in point, the Orange County Marathon was held for the first time in two years on Sunday, May 1st. … Continue reading Marathon effort to raise awareness about Huntington’s disease
Google eases ban on ads for stem cell therapies
What started out as an effort by Google to crack down on predatory stem cell clinics advertising bogus therapies seems to be getting diluted. Now the concern is whether that will make it easier for these clinics to lure unsuspecting patients to pay good money for bad treatments? A little background might help here. For … Continue reading Google eases ban on ads for stem cell therapies
It’s hard to be modest when people keep telling you how good you are
THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST I have a confession. Deep down I’m shallow. So when something I am part of is acknowledged as one of the best, I delight in it (my fellow bloggers Katie and Esteban also delight in it, I am just more shameless about letting everyone know.) And … Continue reading It’s hard to be modest when people keep telling you how good you are
The bootcamp helping in the fight against rare diseases
THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST Dr. Emil Kakkis at the Rare Entrepreneur Bootcamp Imagine you or someone you love is diagnosed with a rare disease and then told, “There is no cure, there are no treatments and because it’s so rare no one is even doing any research into developing a … Continue reading The bootcamp helping in the fight against rare diseases
Promoting stem cell therapies, racial justice, and fish breeding
THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST Jan Nolta, PhD, in her lab at UC Davis; Photo courtesy UC Davis Working at CIRM, you get to meet many remarkable people, and Jan Nolta, PhD, certainly falls into that category. Jan is the Director of the Stem Cell Program at UC Davis School of Medicine. She … Continue reading Promoting stem cell therapies, racial justice, and fish breeding
Joining the movement to fight rare diseases
THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST It’s hard to think of something as being rare when it affects up to 30 million Americans and 300 million people worldwide. But the truth is there are more than 6,000 conditions – those affecting 200,000 people or fewer – that are considered rare. Today, … Continue reading Joining the movement to fight rare diseases
Making stem cell and gene therapies available and affordable for all California patients
THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST Developing a new therapy: Photo courtesy UCLA There is no benefit in helping create a miraculous new therapy that can cure people and save lives if no one except the super-rich can afford it. That’s why the California Institute for Regenerative Medicine (CIRM) has made creating … Continue reading Making stem cell and gene therapies available and affordable for all California patients