Rare Disease Day in Sacramento, California How can a condition that affects 30 million Americans—one in ten people—be called rare? Yet rare diseases are defined as those affecting fewer than 200,000 people. There are about 7,000 such diseases, and fewer than five percent have a treatment. Last Wednesday, people across the U.S. gathered to call … Continue reading Breaking the isolation of rare diseases
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Rare Disease Day, a chance to raise awareness and hope.
Battling a deadly disease like cancer or Alzheimer’s is difficult; but battling a rare and deadly disease is doubly so. At least with common diseases there is a lot of research seeking to develop new treatments. With rare diseases there is often very little research, and so there are fewer options for treatment. Even just … Continue reading Rare Disease Day, a chance to raise awareness and hope.