The world of stem cell research is advancing rapidly, with new findings and discoveries seemingly every week. And yet some things that we knew years ago are still every bit as relevant today as they were then.
Take for example a TEDx talk by Dr. Daniel Kota, a stem cell researcher and the Director, Cellular Therapy – Research and Development at Houston Methodist.
Dr. Kota’s talk is entitled: “Promises and Dangers of Stem Cell Therapies”. In it he talks about the tremendous potential of stem cells to reverse the course of disease and help people battle previously untreatable conditions.
But he also warns about the gap between what the science can do, and what people believe it can do. He says too many people have unrealistic expectations of what is available right now, fueled by many unscrupulous snake oil salesmen who open clinics and offer “treatments” that are both unproven and unapproved by the Food and Drug Administration.
He says we need to “bridge the gap between stem cell science and society” so that people have a more realistic appreciation of what stem cells can do.
Sadly, as the number of clinics peddling these unproven therapies grows in the US, Dr. Kota’s message remains all too timely.
Every day I field phone calls and emails from people looking for a stem cell therapy to help them cope with everything from arthritis to cancer. Often, they will mention that they saw an ad for a clinic online or in a local newspaper claiming they had stem cell therapies that could help fix anything and asking me if they are legitimate.
Even after I try to explain that the therapies these clinics are offering haven’t been tested in a clinical trial and that there’s scant evidence to show they are even safe let alone effective, I know that a good chunk of the callers are going to try them anyway.
Now a survey by the Mayo Clinic takes a deeper dive into why people are willing to put science aside and open up their wallets to go to predatory stem cell clinics for so-called “therapies”.
In a news release Dr. Zubin Master, a co-author of the study, says many patients are lured in by hype and hope.
“We learned that many patients interested in stem cells had beliefs that are not supported by current medical evidence. For example, many thought stem cells were better than surgery or the standard of care.”
The survey asked 533 people, who had approached the Mayo Clinic’s Regenerative Medicine Therapeutic Suites for a consultation about arthritis or musculoskeletal problems, three questions.
Why are you interested in stem cell treatment for your condition?
How did you find out about stem cell treatment for your condition?
Have you contacted a stem cell clinic?
A whopping 46 percent of those who responded said they thought stem cell therapy would help them avoid or at least delay having to get a hip or knee replacement, or that it was a better option than surgery. Another 26 percent said they thought it would ease the pain of an arthritic joint.
The fact that there is little or no evidence to support any of these beliefs didn’t seem to matter. Most people say they got their information about these “therapies” online or by talking to friends and family.
These “therapies” aren’t cheap either. They can cost thousands, sometimes tens of thousands of dollars, and that comes out of the patient’s pocket because none of this is covered by insurance. Yet every year people turn to these bogus clinics because they don’t like the alternatives, mainly surgery.
There is a lot of promising stem cell research taking place around the US trying to find real scientific solutions to arthritic joints and other problems. The California Institute for Regenerative Medicine (CIRM) has invested almost $24 million in this research. But until those approaches have proven themselves effective and, hopefully, been approved for wider use by the Food and Drug Administration, CIRM and other agencies will have to keep repeating a message many people just don’t want to hear, that these therapies are not yet ready for prime time.