When people ask me what I do at CIRM I sometimes half-jokingly tell them that I’m the official translator: I take complex science and turn it into everyday English. That’s important. The taxpayers of California have a right to know how their money is being spent and how it might benefit them. But that message … Continue reading Explaining COVID can be a pitch
Stem cell tourism
Meet the people who are changing the future
Kristin MacDonald Every so often you hear a story and your first reaction is “oh, I have to share this with someone, anyone, everyone.” That’s what happened to me the other day. I was talking with Kristin MacDonald, an amazing woman, a fierce patient advocate and someone who took part in a CIRM-funded clinical trial … Continue reading Meet the people who are changing the future
Don’t believe everything you read
(PRNewsfoto/Deseret News) The Deseret News is Utah's oldest continuously published daily newspaper. It has a big readership too, with the largest Sunday circulation in the state and the second largest daily circulation. That’s why when they publish paid advertisements that look like serious news articles it can be misleading, even worse. This week the Deseret … Continue reading Don’t believe everything you read
Why “Ask the Stem Cell Team” Remains Important
These are definitely strange, unusual and challenging times. Every day seems to bring new restrictions on what we can and should do. All, of course, in the name of protecting us and helping us avoid a potentially deadly virus. We all hope this will soon pass but we also know the bigger impact of the … Continue reading Why “Ask the Stem Cell Team” Remains Important
Enabling the Best Choice for Patients: The Need for Effective Patient Navigation
Making sure patients get the treatment they need and not a "snake oil" substitute We are at a turning point in regenerative medicine as the first wave of treatments have obtained FDA approval. But at the same time as we see the advance of scientifically rigorous research and regulated products we are also witnessing the … Continue reading Enabling the Best Choice for Patients: The Need for Effective Patient Navigation
The podcast that sounds like a science thriller but for the patients involved is all too real
Laura Beil, writer and producer of the Bad Batch podcast As we get close to the end of the year there is no shortage of lists of the “best of the year” and even this year the “best of the decade”. But when it comes to podcasts it would be hard to think of a … Continue reading The podcast that sounds like a science thriller but for the patients involved is all too real
When Google turns on you, you know you are in trouble
For years CIRM and others in the stem cell community (hello Paul Knoepfler) have been warning people about the dangers of going to clinics offering unproven and unapproved stem cell therapies. Recently the drum beat of people and organizations coming out in support of that stand has grown louder and louder. Mainstream media – TV … Continue reading When Google turns on you, you know you are in trouble
Regulated, reputable, and reliable – distinguishing legitimate clinical trials from predatory clinics
Here at CIRM, we get calls every day from patients asking us if there are any trials or therapies available to treat their illness or an illness affecting a loved one. Unfortunately, there are some predatory clinics that try to take advantage of this desperation by advertising unproven and unregulated treatments for a wide range … Continue reading Regulated, reputable, and reliable – distinguishing legitimate clinical trials from predatory clinics
Clinical trials: separating the wheat from the chaff
What do you do when the supposed solution to a problem actually turns out to be a part of the problem? That’s the situation facing people who want to direct patients to scientifically sound clinical trials. Turns out the site many were going to may be directing patients to therapies that are not only not … Continue reading Clinical trials: separating the wheat from the chaff
Taking the message to the people: fighting for the future of stem cell research in California
Stem cells have been in the news a lot this week, and not necessarily for the right reason. First, the US Food and Drug Administration (FDA) won a big legal decision in its fight to crack down on clinics offering bogus, unproven and unapproved stem cell therapies. William Shatner: Photograph by Jerry Avenaim.wikimedia.org/w/index.php?curid=3413082 But then … Continue reading Taking the message to the people: fighting for the future of stem cell research in California