In her home on the island of Kauai with her husband Chris Constantino at her side and her two children playing nearby, Nichelle Obar breaks the illusion that nothing was ever amiss in her family's slice of paradise. "It all happened so fast," she says, explaining the cascade of news and life-and-death decisions she and … Continue reading Looking Back in Gratitude: One Family, One Trial, and Moving Science Forward
Nichelle Obar
Surviving with Joy
Dr. Tippi MacKenzie (left) of UCSF Benioff Children’s Hospital San Francisco, visits with newborn Elianna and parents Nichelle Obar and Chris Constantino. Photo by Noah Berger Alpha thalassemia major is, by any measure, a devastating disease. Caused by four missing or mutated genes, it almost always leads to death before or shortly after birth. Treatment … Continue reading Surviving with Joy