Rare Disease: An Uphill Battle for Diagnosis and Treatment
THIS BLOG IS ALSO AVAILABLE AS AN AUDIO CAST When Dalia was 5 years old, she was finally diagnosed with MERRF syndrome– an extremely rare form of mitochondrial disease. By then, her parents had been searching for an answer for three frustrating years. And like most parents of a child suffering from an undiagnosed medical … Continue reading Rare Disease: An Uphill Battle for Diagnosis and Treatment